Privacy Policy | Transplant Teenz

Effective Date: June 1, 2024

1. Introduction

Welcome to Transplant Teenz (TTZ). We are committed to protecting your privacy and ensuring the security of your personal information. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit our website transplanttz.org and use our services.

2. Information We Collect

- Personal Information: We may collect personal information that you voluntarily provide to us, such as your name, email address, phone number, and any other details you choose to share.

- Usage Data: We may collect information about how you use our website, including your IP address, browser type, pages visited, and other usage statistics.

3. How We Use Your Information

We use your information for the following purposes:

- To Provide and Improve Our Services: To deliver the services you request, enhance user experience, and improve our website.

- To Communicate with You: To respond to your inquiries, send updates, and provide information about our programs and events.

- For Marketing and Outreach: To notify you of new programs, events, and opportunities related to Transplant Teenz.

4. How We Share Your Information

We do not sell, trade, or otherwise transfer your personal information to outside parties except as described below:

- Service Providers: We may share your information with third-party service providers who assist us in operating our website or conducting our business, provided they agree to keep your information confidential.

- Legal Requirements: We may disclose your information if required to do so by law or in response to valid legal requests.

5. Data Security

We implement appropriate security measures to protect your personal information from unauthorized access, alteration, disclosure, or destruction. However, no method of transmission over the Internet or electronic storage is 100% secure, so we cannot guarantee absolute security.

6. Your Choices

- Access and Update: You can access and update your personal information by contacting us at admin@transplanttz.org.

- Opt-Out:*You may opt out of receiving marketing communications from us by following the unsubscribe instructions provided in those communications.

7. Cookies and Tracking Technologies

We use cookies and similar tracking technologies to enhance your experience on our website. You can manage your cookie preferences through your browser setting.

8. Links to Other Websites

Our website may contain links to third-party websites. We are not responsible for the privacy practices or content of those external sites. We encourage you to review their privacy policies.

9. Children’s Privacy

Our website and services are not intended for children under the age of 13. We do not knowingly collect personal information from children under 13. If we become aware that we have collected such information, we will take steps to delete it.

10. Changes to This Privacy Policy

We may update this Privacy Policy from time to time. We will notify you of any significant changes by posting the new policy on our website. Your continued use of our website after such changes constitutes your acceptance of the updated policy.

11. Contact Us

If you have any questions or concerns about this Privacy Policy, please contact us.

Effective Date: May 1, 2025

Transplant Teenz is a youth-centered program operated by Brittany Speaks, a nonprofit organization dedicated to supporting teens and families impacted by organ and tissue transplantation. This Privacy Policy explains how we collect, use, protect, and share information through the Transplant Teenz App.

We are committed to protecting the privacy of our users, especially youth and families navigating sensitive medical journeys.

1. Information We Collect

We may collect the following types of information:

a. Personal Information

Name, email, date of birth
Parent/guardian information for users under 13
General transplant-related role (e.g., recipient, caregiver, sibling)

b. App Usage and Activity

Participation in educational activities, surveys, or events
Device type, app version, IP address (for functionality and safety)

c. Optional User-Submitted Content

Profile photo, bio, journal entries, and group/community participation

We do not collect or store medical records.

2. How We Use Your Information

We use collected data to:

Provide a safe and supportive environment for teens affected by transplants
Connect users with appropriate community groups and resources
Improve educational content, peer support features, and overall app experience
Communicate updates, reminders, and event notifications
Ensure app safety and prevent misuse

3. Children’s Privacy and Parental Consent

We follow COPPA (Children’s Online Privacy Protection Act) guidelines.

Children under 13 must obtain verified parental/guardian consent to use the app.
Parents may review or delete their child’s information at any time.

We never ask for unnecessary personal details and only collect what’s needed to provide a safe, educational experience.

4. Data Sharing

We do not sell or rent your data.
We may share limited information:

With trusted service providers who help operate the app (under strict confidentiality agreements)
When legally required (e.g., to comply with laws or protect user safety)

We never share health-related information for advertising or third-party marketing.

5. Data Security

We use technical, administrative, and physical safeguards to protect your data.
This includes encrypted connections, limited access controls, and regular security updates.

6. Your Rights and Choices

You or your parent/guardian may:

Update your information
Delete your account
Request data removal by contacting us at [Insert Contact Email]

7. External Links

The app may link to external websites or resources. Brittany Speaks is not responsible for the privacy practices or content of those third-party sites.

8. Updates to This Policy

We may update this policy from time to time. Any changes will be posted in-app and updated with a new “Effective Date.” Substantial changes will be clearly communicated to users and families.